What to do about Suicide

June, 20, 2018 | 50 Comments

Comments

  1. It takes great courage to kill oneself -maybe we need a public memorial to all those who have suffered such great harm from prescription drugs.
    Have left a comment on Duncan Doubles’ critical psychiatry blog ‘The true situation about antidepressant discontinuation problems ‘ to also draw attention to DH and Rxisk blogs – there is a link to the podcast Mad in America which gives an update on the complaint against the college of psychiatrists. Seems the GMC won’t take it up as the complaint is claimed to be against an institution not individuals – institutions though are obviously led by individuals -but the Charity Commission is an option. The complaint will probably lose but they are asking readers to help keep the issue in the public eye. The college seems to have no shame though and more importantly has funding to continue a propaganda ‘war’ as others have described it on the previous blog. The college has maybe learned lessons from Edward Bernay ,the nephew of Sigmund Freud who has been described as the ‘father’ of mass social engineering through psychologically based propaganda. He was closely connected to the Tavistock Institute which is still connected to the college of psychiatrists and numerous universities, health charities, therapy organisations and the health department. E Bernay used his understanding of psychoanalysis to advise governments and organisations how to manipulate ‘the masses’ (most of us). The masses are revolting – he didn’t predict the internet or the degree of compassion and respect shared amongst those who speak out against one of the most shameful abuses of power in a so called democracy. Give us the evidence, publish the data – the public provided it it – it belongs to all of us..S’cuse another rant.

  2. Some good points in this post.

    I learned the hard way with the MHRA. My ego got in the way with those particular muppets in as much that I thought I could find a chink in their armour and then make them see the error of their ways.

    Three meetings with them benefited them more than I. It was an “appease him” exercise, you know, keep your friends close and your enemies closer.

    Regarding Drs, well, they are a younger breed these days, fresh out of med school with all the answers, in fact not many doctors ask questions, unless, of course, they are diagnosing. This trait of theirs is probably responsible for allowing drug company reps to promote drugs for off-label uses. Yeah, doctors will ask questions to try and determine the illness in front of them.

    Ironic isn’t it. If they would have asked the Lilly reps back in 1987 more in-depth questions about Prozac then we probably wouldn’t be in this mess today. 5 years on came the GSK reps with Seroxat. Again, the doctors never asked any questions. If they did then they, perhaps would have seen the onset of a cancer growing.

    Here we are in 2018. Those Drs of 87 and 92 are part of the reason why we find ourselves in this mess. They accepted the untruths without questioning them. They didn’t see the gifts as unethical, hey, they had studied for ten years at med school so they were entitled to a few perks of the job, right?

    They failed to spot the cancer because they didn’t ask questions.

    It’s that simple.

    • Oh Yes.
      And when the doctors of today gets cornered and faced with questions, they base their reply on the lack of questions of the older doctors.
      The drugs were home free the very second they weren’t questioned in the initial years of useage, a decision which is perhaps not easy to blame on the younger generation of doctors.

      The drugs now have such a momentum of their own, that it can’t be stopped by almost any instances of safety regulators or advocates like yourself. Doctors, scientists, regulators, journalists and academics all praise the drug.

      I often wonder what makes you (and others around this topic) keep fighting, because this “trench” is filled to the brim with thick, stinking mud.

  3. https://www.theguardian.com/society/2018/jun/20/gosport-war-memorial-hospital-opioid-drugs-policy-inquiry

    “Handing over a loved one to a hospital, to doctors and nurses, is an act of trust and you take for granted that they will always do that which is best for the one you love.”

    “It represents a major crisis when you begin to doubt that the treatment they are being given is in their best interests. It further shatters your confidence when you summon up the courage to complain and then sense that you are being treated as some sort of ‘troublemaker’.”

    “It is a lonely place, seeking answers to questions that others wish you were not asking.”

    Seems it takes a Bishop to put into words what all of us here and on Rxisk have been fighting. Yesterday the report into untoward deaths at a local hospital – a couple of miles down the road from where I live and very well known to all in this area – was published. A group of gutsy relatives have been fighting to get at the truth of what happened for nigh on 30 years. We breed tough people round here – they had to fight the medical Establishment who were well supported by the police Establishment – who were all well supported by the State Establishment at national and local level. These weren’t people in well-connected jobs, or with friends in any kind of high place – they were just ordinary folk who refused to give up and they’ve had a hell of a battle. The impact of the Report was such that even May and Hunt were wheeled out to ‘apologise’.

    So, it can be done. One small but huge outcome of the Report is that every single document, minutes of meetings, testimonies and records relating to the scandal is available for anyone to read online – no one will have to hunt the info down – there’s a dedicated website. Transparency in action. Maybe a tiny drop in the ocean but it’s damn well there.

    Those words made me cry – ‘It’s a lonely place, seeking answers to questions that others wish you weren’t asking’ because they made me think of everyone on here.

    • Thank you for this very moving and powerful comment Sally.

      “Handing over a loved one to doctors and nurses is an act of trust” —

      “It represents a major crisis when you begin to doubt that the treatment they are being given is in their best interests”.

      These few words describe those moments of terror and disbelief when those
      “doctors” in whom we had placed our trust were prepared to ignore our cry for caution as their enforced olanzapine and fluoxetine rapidly produced cranial nerve lesions.

      These are visible changes in the face and head that indicate the emergence of very serious, and likely irreversible brain injury.

      “It doesn’t happen on olanzapine” they pompously pronounced, yet (after five days) – it certainly had).

      They hadn’t the diagnostic wit or wisdom to differentiate intense akathisia from
      “psychotic depression”.
      The only pathology present prior to misdiagnosis was an adverse drug reaction.

      Your adult child is locked up, and her brain is being irreversibly damaged in front of you.
      The injuries intensify day by day.
      The more you beg them to see these injuries, the more you are ridiculed and the greater the palpable contempt you face at every visit.

      You are indeed thenceforth “trouble makers”, giving the so called “nurses’ free rain to tease, torment, ridicule and destroy.

      These words made me cry too Sally, but only inside.

      Their chemical destruction of an enchanting and gifted adult child has left no physical tears available.

      It is indeed ” a lonely place, seeking answers to questions that others wish you weren’t asking”.

      It traumatises us further to think how much of the proposed “Increased NHS funding” will be “invested” in maiming and destroying our children.

    • You have described this very well, Sally; all might be interested in the Press Conference given by this remarkable Bishop

      https://www.youtube.com/watch?v=DewwZrrPepg

      The Panel are of the opinion that it is:

      -An Institutional Practise

      -The Patronising Disposition of Unaccountable Power

      -Putting their own Reputation above the Interests of those asking the Questions

      Clearly moving, “It is a journey without destination …

    • It’s heartbreaking news Sally – A phrase which will stick in my mind for ever was stated by James Jones the author of the latest report –
      ‘The Patronising Disposition of Unaccountable Power’ – how that will resonate with us all.

  4. PhD dissertation looks beyond published literature to investigate the harms of depression medication

    http://nordic.cochrane.org/si
    tes/nordic.cochrane.org/files/public/uploads/tarang_sharma_phd.pdf

    Cochrane Nordic‏ @CochraneNordic

    PhD dissertation looks beyond published literature to investigate the harms of depression medication https://bit.ly/2tnMcEg  @TShealthpolicy #sundpol #clinicaltrials #medicalresearch

    MSc Tarang Sharma defended her PhD dissertation on 23 April 2018.  She studied the effects of selective serotonin reuptake inhibitors (SSRIs) and serotonin-norepinephrine reuptake inhibitors (SNRIs) on suicidality, violence and quality of life based on clinical study reports.

    Funding: Laura and John Arnold Foundation, and the Nordic Cochrane Centre.

    Principal supervisor: Peter C. Gøtzsche
    Primary co-supervisor: David Healy
    External assessor: Jørn Wetterslev

    This aim of this PhD was to shed light on true effects of SSRIs and SNRIs especially relating to suicidality, aggressive behaviour and quality of life by a series of systematic reviews using clinical study reports (CSRs), instead of journal publications as source documents. This has been accomplished by four research projects and related publications. The first was a systematic review and meta-analysis studying the serious harms of deaths, suicidality, aggressive behaviour and akathisia. The second was a methodological study considering the different statistical approaches for meta-analysing these rare outcomes in order to get more reliable and less-biased estimates for the effects of these serious harms. The third study compared the study drop-out rates and the fourth study looked at the quality of life outcomes using SF-36 and EQ-5D in the trials of SSRIs and SNRIs

  5. The Gosport Hospital story is a horrible one, but thanks Sally for passing it along! I hope it serves as some kind of wake-up call to folks in the UK, before the full force of the opioid painkiller epidemic crashes against your shores. From what I hear the use of opioids is on the upswing over there.

    On this side of the Atlantic, some truly wretched news from the Mexican border: Some of the children torn from their parents by Trump’s immigration police have been sent to a private “treatment center” under contract with the government — and forcibly injected with powerful psychotropic drugs. One child has had “ten different pills and shots” while at Shiloh Treatment Center. Including three antipsychotics, plus benztropine which was probably given to control the muscle rigidity and tremors produced by the antipsychotics.

    https://www.revealnews.org/blog/immigrant-children-forcibly-injected-with-drugs-lawsuit-claims/

    In a strange way, I find the outrage generated by this story to be very encouraging. This is nothing new — it’s the same treatment this country dishes out to far too many of “our own” foster children (especially the black and brown ones!) at for-profit warehouses like Shiloh all over the country.

    At least this time, people seem to know instinctively what is going on. Frightened, traumatized children are being drugged to the gills to control “disruptive” behavior — which is a totally natural reaction to what they have been put through! If they’ve been diagnosed with a “mental illness”, it’s strictly for cover. Maybe this is a teachable moment. If people find out how often the same thing is routinely done to kids in their own city, maybe they will start to question it. No matter what NAMI says.

    It always seems to take a splashy tragedy to force a little progress. I wish it wasn’t that way. Still, if an everyday atrocity like this finally lands on the front page of the papers, we can’t waste the opportunity. The owner of Shiloh has been called out by name in the Houston Chronicle. The same ought to happen with the psychiatrist who signs off on this madness.

  6. A terror beyond falling …

    David Healy‏ @DrDavidHealy 23h

    Someone needs to blow the whistle on akathisia and treatment-induced suicide. Patients (and their next of kin) discuss next steps: https://davidhealy.org/what-to-do-abo

    The Deadly Paxil Side Effects: Akathisia, Emotional Blunting and Suicidal Behavior

    Extract:

    Jurors in the Dolin trial also heard from psychiatrist David Healy, one of the world’s foremost experts on Paxil and drugs in its class, known as SSRI’s (selective serotonin reuptake inhibitors). Dr. Healy told the jurors that Paxil and drugs like it can create in some people a state of extreme “emotional turmoil” and intense inner restlessness known as akathisia, one of several known Paxil side effects.

    “People have described it like a state worse than death. Death will be a blessed relief. I want to jump out of my skin,” Dr. Healy said. Healthy volunteer studies have found that akathisia can happen even to people with no psychiatric condition who take the drug.

    According to Dr. Healy, “… there’s a bunch of things right at the start [of taking the drug] that the drugs do all of which can contribute to you becoming suicidal.” Akathisia may begin a few days after starting treatment and gradually worsen over the next 7 – 10 days.

    Dolin jumped in front of a Chicago Transit Authority train six days after starting treatment.
    Akathisia is an on-off phenomenon; a person could be fine one minute, and thirty minutes later feel suicidal. It is also a known generic Paxil side effect that has been shown to disappear after a person stops taking the drug.

    As a Rxisk.org blog points out, some of the experiences Bruce Springsteen shares in his book, Born to Run, may actually have been treatment-induced akathisia rather than “agitated depression.” Bruce, having been on antidepressants for the last 12 to 15 years of his life, describes a time he came home after being on the road:

    “I had an attack of what was called “agitated depression.” During this period, I was so profoundly uncomfortable in my own skin that I just wanted OUT. It feels dangerous and bring plenty of unwanted thoughts. I was uncomfortable doing anything. Standing …walking …sitting down…everything brought waves of an agitated anxiety that I’d spend every waking minute trying to dispel. Demise and foreboding were all that awaited and sleep was the only respite. During waking hours, I’d spend the day trying to find a position I would feel all right in for the next few minutes. I was not hyper. In fact, I was too depressed to concentrate on anything of substance.

    “I’d pace the room looking for the twelve square inches of carpet where I might find release. If I could get myself to work out, that might produce a short relief, but really all I wanted was the bed, the bed, the bed, the bed and unconsciousness. I spent good portions of the day with the covers up to my nose waiting for it to stop. Reading, even watching television, felt beyond my ability. All my favorite things – listening to music, watching some film noir – caused such unbearable anxiety in me because they were undoable. Once I was cut off from all my favorite things, the things that tell me who I am, I felt myself dangerously slipping away. I became a stranger in a borrowed and disagreeable body and mind.”

    Emotional Blunting and the Connection to Antidepressant Suicide

    Another Paxil side effect known to increase the risk of suicide is emotional blunting. This is also a well-recognized side effect of drugs in Paxil’s class, one that others have referred to as apathy or emotional indifference.

    Dr. Healy told the jurors in the Dolin trial that emotional blunting, combined with akathisia, can lead to a mental state in which an individual has thoughts of harming themselves or others, but is “numbed” to the consequences of their actions. Drugs in the Paxil class can also cause someone to “go psychotic, become delirious,” Dr. Healy explained.

    22 individuals who committed suicide during the Paxil clinical trials. Sixteen of the suicides were violent in nature, including multiple suicides using firearms.

    https://www.baumhedlundlaw.com/prescription-drugs/paxil-injuries/generic-paxil-suicide-lawsuit/

    “It’s a drug-induced reaction, a compulsion to kill yourself, which again, I’ve interviewed people who have survived these attempts. So, I refer to them as a paroxetine-induced accident, not a suicide. It’s paroxetine. It’s the label that didn’t warn that is the cause.”

    Harvard psychiatrist and SSRI expert Joseph Glenmullen, March 29, 2017 trial testimony

    It’s an accident waiting to happen or it’s a happen waiting to accident .. ?

  7. Yes, we have two major ‘splashes’, Gosport and Shiloh, but, its how do we draw attention to the ‘isolated’ incidences.

    Gosport has drawn attention, rightly so, but, I can tell you that my own dear mum was subjected to reckless amounts of Gabapentin and Morphine and Fentanyl ‘but, she’s not in any pain’ ‘oh, but she might be’ and fading fast from her skeletal frame the doses were not even adjusted and she kept murmuring ‘they are killing me’. All my concerns fell on deaf ears until after six months with repeated claims that she is ‘very near to death’, she did die. One minute she was taking my teaspoons of tomato soup, the next minute after what looked like a huge dose, gone. I had a postmortem, I wanted an inquest but, no, the coroner reported, as usual, pneumonia.

    This was long, it was protracted, it was difficult and it was a complete waste of time.

    The same applied to everything I could possibly do about Seroxat ..

    We can only hope that the Powers That Be realise, at some point, that this endemic use of medication when it is not required is happening in most hospitals, nursing homes, and most institutions for children and adults.

    Gosport and Shiloh, are pretty near the bone, but, so is everyone’s horrific experience which is annotated so often and repetitively, on this blog and on Rxisk.

    What do we do about it – it depends – whether it is in fact extreme negligence – and no one appears to want to know.

    Auntie Psychiatry June 21, 2018 at 1:09 pm

    “Kate Adlington, suggests that much of the media coverage of The Lancet’s antidepressant network meta-analysis was insufficiently nuanced…”

    This makes me so angry! There can be no doubt that all media coverage was very carefully orchestrated by the Royal College of Psychiatrists via the Science Media Centre. Professor Sir Simon Wessely is conveniently on the Board of Trustees of this shady “charity”.

    In fact, the journalists in the mainstream media did a pretty good job of accurately reporting what was fed to them by the lead authors of the study and other high-profile, media savvy psychiatrists. They were out in force and all dutifully on message with the line “antidepressants work, and more people would benefit from treatment for depression…”

    Here it is again…

    1. Lead researcher Dr Andrea Cipriani, from the University of Oxford, told the BBC: “This study is the final answer to a long-standing controversy about whether anti-depressants work for depression… I think this is very good news for patients and clinicians.”

    2. Andrea Cipriani in The Metro: “Under-treated depression is a huge problem and we need to be aware of that. We tend to focus on over-treatment but we need to focus on this.”

    3. Carmine Pariante was another one on our screens:
    “This meta-analysis finally puts to bed the controversy on antidepressants, clearly showing that these drugs do work in lifting mood and helping most people with depression.”

    4. “Good news… antidepressants do work and, for most people, the side-effects are worth it.” Allan Young

    5. “It puts to bed the idea that antidepressants don’t work – all 21 antidepressants were more effective than placebo at treating depression”. Prof Anthony Cleare
    Then there was the “million more” claim:

    6. John Geddes, professor of epidemiological psychiatry at Oxford University, who worked on the study, told The Guardian: ‘It is likely that at least one million more people per year should have access to effective treatment for depression, either drugs or psychotherapy.’

    This was accurately reported via the Press Association as…
    “It has been suggested a million more people per year in the UK should be given access to treatment for depression, through either drugs or talking therapies, with scientists saying the study proves drugs do work.”

    7. The Raconteur:
    John Geddes: Only one in six people with depression receive effective treatment with GPs “squeamish” to prescribe medication for mental health conditions.
    Pariante: We have a wealth of evidence that antidepressants do a good job for some people, and there are a lot of people who could benefit from them and now will.

    “Such broad-brush headlines and content do not accurately reflect the study’s scope and results, Adlington contends…”

    But this was NOT media spin – it was deliberately put out there by Psychiatry’s PR machine.

    We need our own PR machine to work for us and with us .. how we get that is anyone’s guess .. but, Auntie, has a good go

  8. So many great posts; food for thought.

    Regarding trying to create awareness & save lives through related major ‘splashes’ or a way ‘in’ (or ‘out’) in raising awareness:

    Public health officials & business leaders like Bill Gates have long warned that the world is not ready for the next epidemic or pandemic.

    Bill Gates is also back in the media warning us again recently…

    While less ‘contagious’ than ‘SARS’ (but so phonetically similar), ‘ADRS’, so far, as we know, have proven to be a greater threat to lives worldwide than SARs was or than anything looming on the horizon (yet); the 4th leading cause of death in the US, 6th leading cause of deaths worldwide, causing more deaths than pulmonary disease, diabetes, AIDS, pneumonia & car accidents etc. (The US FDA).

    Amongst possible ideas for another way ‘in’ or ‘out’ in raising awareness, relatively easy & cost effective for anyone to produce with some sophistication, a 5 or 6 slide, 15 seconds or so, video:

    ‘(NOW) PANDEMIC’ (dissolves, possibly inappropriate?)

    [Acronym appearing or slowly solving into the background of the following text appears to the viewers as most likely morphing into the acronym ‘SARS’]

    ‘Already the 4th leading cause of death in the US…’ (source)

    ‘The 6th leading cause of deaths worldwide..’ (sources)

    Acronym which has been slowly solving into the background actually morphs into, whole window & lingering, ‘ADRS.’

    [link; phrase; stats?]

    [Know the Rxisks?]

    Short video as best produced & optimised for viral sharing as possible (& with short length of video on it); first slide, or holding slide, rather to convey something BIG is (already) happening & to ask the viewer a question? Are you aware/prepared?

    Though no ‘controversy’ here, just the cold, hard, indisputable, facts & where so many deaths could be prevented with greater awareness, if unable to reach & convince key influencers, famous people, celebrities (if they could possibly be reached at all even with regards to simply sharing) to encourage as many affected or concerned as possible to share on related issues/comments made on social media?

    Or just a desperfrustraging idea?!

  9. I’ve been thinking about the ACT-UP veterans … David, have you or anyone else tried to make contact? It might be VERY useful given some of the things we are up against.

    In the end, their struggle to speed up development of AIDS treatments did get used by the drug companies, as a supposed example of how “too much regulation” of Big Business was hurting patients. But to say that ACT-UP’s goal was to “make things easy for Pharma,” or to blame them for the spread of toxic and not-very-effective drugs, gets a lot of stuff wrong, I think.

    Especially when it comes to AZT, and to GSK. Or rather, to Burroughs Wellcome, GSK’s forerunner. AZT was the granddaddy of all highly-toxic and not-so-great AIDS drugs. It was owned by Burroughs-Wellcome but had languished on the shelf for 20 years, labeled as a failed cancer drug. When it proved to have some effect on HIV, B-W saw the dollar signs, and NIH started focusing all its work on AZT at the expense of other drugs.

    The first public action of ACT-UP, I think, was the Die-In on Wall Street aimed at Burroughs Wellcome. ACT-UP people thought the cause of FDA and NIH foot-dragging on finding better alternatives was NOT simply “bureaucratic conservatism.” It was their open collusion with B-W, which was charging ruinous prices for the stuff and making truly awesome profits. ACT-UP people fought to bring out the truth about AZT’s downsides–and I don’t think they ever fought for greater access to thalidomide. I have Googled and Googled, and I can’t find anything about HIV and thalidomide written before 1998.

    Anyway–these people are still alive mostly, they have built an amazing oral-history archive, and some of them might be real useful. (Hey, at least they don’t mind getting specific about sex!) Iris Long, ACT-UP’s volunteer medicinal chemist, is now 85 years old. She might be an amazing interview, but best not to wait too long …

    Here’s the ACT-UP Oral History Project:
    http://www.actuporalhistory.org/interviews/index.html

    • Jo

      I have tried to make contact. I’ve pitched it to people who were active then or the inheritors of the movement – those who pushed for access to triple therapy but to my surprise none of them and no NGO – MSF, Open Society, ACLU, or other body seems to “get it”.

      In brief they have problems with the idea of Rights to a Poison – Rights to Sacraments yes, Poisons no. We live in a very one dimensional world – things are only good or bad but never right for one and bad for another.

      Against this background, having the support of Pharma makes a key difference.

      Also getting people on the street for access to trial data just isn’t going to happen. Has to be a different set of tactics and I think the activists of the 90s and 00s are too wedded to what they did then.

      D

      • I will try to come up with some names. I suspect they will be people who were leaders at that time but who are NOT recognized as such today. Iris Long is one who may be regularly congratulated (at least within the LGBT community) but nobody actually listens to.

        “People who were active then” is a pretty broad set, but as to the “inheritors of the movement” — well I think you’re right. The official AIDS organizations have been totally won to the promotion of “PrEP” or “pre-exposure prophylaxis” as the key to stopping the spread of HIV. Which means getting healthy young men on long-term daily doses of Truvada, an anti-retroviral drug made by Gilead, to prevent infection.

        Gilead has helped them craft a position that anyone who raises questions about “PrEP” is either anti-gay, or simply anti-sex. It’s appalling to see a whole patient community just about merge with a drug company on this level. I’m not up on the science, but there’s reason to worry both about side effects, and about whether the virus itself might mutate if all the most sexually active young men are on maintenance doses of this stuff. Not to mention the price.

        Larry Kramer was one person who criticized this when no-one else would, and was called terrible names by former comrades. I heard he had since been “won over” to PrEP, but hopefully is still watching it with an independent eye. In short, I agree there is no “AIDS movement” still out there that will “get” the nature of the problem. However, there may be individuals who can give us some invaluable pointers.

  10. It was really quite good to see Jim Armitage, London Evening Standard, mention Bob Fiddaman in a recent article posted .

    Jim Armitage

    https://www.standard.co.uk/business/glaxosmithkline-faces-new-whistleblower-claims-over-unfair-dismissal-a3842706.html

    See Truthman

    https://truthman30.wordpress.com/2018/06/23/thomas-reilly-versus-glaxosmithkline-glaxos-manufacturing-processes-are-not-fit-for-purpose/

    If you really want to cry in the soup, this is another weepy

    https://truthman30.wordpress.com/2018/06/22/peter-humphrey-describes-his-life-inside-a-chinese-prison/

    We should not underestimate news and media, shutdown..

    I always look forward to the monthly RxISK Newsletter and in June, 2018, why has Facebook banned The Spectre of Dissent?

    They obviously don’t ‘approve’ of the ‘content’, presumably key words/images drew an alert.

    If Facebook do this, then we know we are under siege, under RCP, under RCGP, under Government, under Pharma, and Underneath ..

  11. The RCGP is already advertising it’s conference to be held in GLasgow October 2018. The conference is sponsored by the following drug companies – and there’s probably room for more before October – Money obviously trumps their stated claim to be dedicated to a profession based on transparency evidence freedom from the influence of drug companies. They need to be there but not sponsoring the conference.

    Sponsors:-
    Chiesi; Edwards Life Sciences; Oreal, Vera-Ve, La Roche-Posay; Natural Cycles Nordic. (Also the Scottish tourist board).

    Exhibitors include – Alliance Pharmaceuticals. Still room for more. Also Betci Cadwaladr and NHS Wales

    ‘Why Exhibit?’ ‘The RCGP conference puts you in a room with 1500 primary care profs..Join us to increase your sales, meet competitors, plenty of time to learn about products and services.. a must attend…an unmissable app to sell your business solutions Maximise exposure by becoming a sponsor.’

    There are three levels of sponsorship which include a sort of ‘party bag’ – pretty embarrassing . The Gold gets invite to dinner and celeigh – no dinner for the rest of them.

    Speakers include Ben Goldacre ‘who specialises in misuse of statistics and science’ (really?) and who is plugging his book there.

    This would be an opportunity to hold a demo outside the conference if anybody is up for it, Difficult to make a suggestion I can’t do myself but if there is someone(s) who could I can offer £100 to make materials and get to the conference building .

  12. Re Susanne’s post, although I couldn’t go I would be prepared, now I can, to donate towards or to help in any way also (or to any campaign/s patients and affected families may decide upon).

    Missd are creating a new video and ambient awareness raising.

    If I can get a simplified, short, and more general, curiousity based, ADRs awareness and enquiry raising video targetting people who have no clue of the issues at all or who may find them off-puttingly complex (ie. most unfortunately) produced cheaply I’ll share for feedback.

    (Was thinking, re my previous post, if acronym based, of including AIDS -if not Opiod – in the viewing question/morphing answer of what hidden problem may be causing a ‘pandemic’ level of deaths now).

  13. Maastricht World Survey On 

    Antipsychotic Medication Withdrawal

    antipsychoticwithdrawalsurvey.com/ 

    (translations available soon)

    Have you taken antipsychotic medication (such as Zyprexa, Seroquel, Abilify, Risperdal, Haldol, Geodon, Stelazine, and others), for any condition or diagnosis, with or without other medications? 
     
    (For a list of antipsychotics, also known as neuroleptics or major tranquilizers, click here.)
     
    And did you ever stop taking antipsychotics, or try to stop taking them?
     
    Are you 18 years or older?

    If yes, you can take this survey about antipsychotic withdrawal and attempts to withdraw, including if you stopped taking them completely or if you tried to come off and still take them.

    The survey aims to improve mental health services by better understanding medication withdrawal. Lead researcher is Will Hall, a therapist, PhD student, and former patient who has himself taken antipsychotics. Service users/survivors/consumers from around the world also gave input. The study is sponsored by Maastricht University in the Netherlands; co-sponsors include the International Institute for Psychiatric Drug Withdrawal.

    Beyond Meds/Monica Cassani

    https://beyondmeds.com/2018/05/29/survey-on-antipsychotic-medication-withdrawal-please-take-and-share/

    John Read‏ @ReadReadj 5h

    IMPORTANT NEW INTERNATIONAL SURVEY ABOUT WITHDRAWAL FROM ANTIPSYCHOTICS JUST LAUNCHED. PLEASE HELP WILL HALL DISSEMINATE THIS.

    antipsychoticwithdrawalsurvey.com/ 
    4:58 AM – 25 Jun 2018

    Everything Matters ..

    • Thanks for link re survey Annie – contacted Will H the PhD student, he is going to publicise Rxisk on twitter and facebook

      • This links in very nicely, Susanne, with the new RxISK.org post from Laurie and friends, Mary and Shaun.. would be a good positioning for RxISK..

        The Icarus Project and Freedom Center’s 52-page illustrated guide gathers the best information we’ve come across and the most valuable lessons we’ve learned about reducing and coming off psychiatric medication. Based in more than 10 years work in the peer support movement, this Guide is used internationally by individuals, families, professionals, and organizations, and is available a growing number of translations. Includes info on mood stabilizers, anti-psychotics, anti-depressants, anti-anxiety drugs, risks, benefits, wellness tools, psychiatric drug withdrawal, information for people staying on their medications, detailed Resource section, and much more. A ‘harm reduction’ approach means not being pro- or anti- medication, but supporting people where they are at to make their own decisions, balancing the risks and benefits involved. Written by Will Hall, with a 55-member health professional Advisory Board providing research assistance and more than 50 collaborators involved in developing and editing. The guide has photographs and art throughout, and a beautiful original cover painting by Jacks McNamara.

        http://willhall.net/comingoffmeds/

        The WARM Network: Withdrawal and Recovery Meetings

        https://warmnetwork.net/suggested-resources/

        WARM is a great title …

  14. Re the righteous & timely outrage regarding the drugging of immigrant children & where a picture can garner interest & reflection more than a thousand words (most who have shared their outrage & news about this simply unaware of the/our hypocrisy).

    The latest ‘Time’ Magazine Cover?

    A specific focus on children in & out of ‘care’ & drugging without parental consent (or, more widespread, without informed parental consent regarding access to data, the lack of evidence for actual efficiency in children, exposure to the risks or education even in doctors, much less parents, on how to recognise ADRs)

    A simple awareness raising, potentially life-saving, photo-shopped ‘Crime?’ magazine follow up meme or homage.

    Who to take Trump’s Place as personifying the problem?

    Too distressing to ask any affected parent for a photo of their child? Involvement?

    Or instead of one child crying as symbolic of the plight of the immigrant children, the faces of actual victims in front of many thousands of US or worldwide ‘faceless’ children depicted?.

    Over any picture or attached to any picture, nicely & politely, & without ‘scaremongering’,
    a grassroots campaign specifically asking everyone or ‘all parents’ (& or all GP’s etc.) who were disturbed & outraged at the treatment of immigrant children to share their righteous concern regarding the system to all young children, in the US, of all nationalities around the world, who have been drugged or poly-drugged in care or without informed parental consent.

    (Best educating links/ statistics/warnings not to withdraw a child from any treatment etc…)

    Or, more catchy, ‘Study 329….It’s Time’.

    (As the most famous or accessible study or doorway through which people not embroiled in, or aware of, the issues can become educated on some if not most of the major problems actually rife across clinical studies and the literature generally. Moreover, & most importantly where children are concerned and less able to articulate what they are feeling, awareness of the signs, for parents, of ADRs generally).

    Just a thought & unsure of best, simple proposition, wording etc. & where it would need to be short & specifically action based. Designed for quick reflection & to (also) share….

  15. Re the GSK whistleblower and AIDS activism conversations:

    Maybe someone happened upon this before:

    The Firm, a film and television production and talent management company based in California, last year picked up

    “the untitled Big Pharma/Whistleblower, a corporate thriller.. the ensemble piece tells intersecting stories surrounding a new controversial behavioural drug being willfully peddled to inner city families while a scrappy, driven district attorney clashes with a young and very ambitious pharmaceutical rep who is forced to participate in a wide-ranging conspiracy”

    Brenner previously produced the Oscar Winning ‘Dallas Buyers Club’ (the story of Ron Woodroof, an AIDS patient diagnosed in the mid -1980s who smuggled unapproved pharmaceutical drugs into Texas for treating his symptoms, then distributed them to others suffering from AIDS whilst up against the FDA).

    https://deadline.com/2017/02/the-firm-acquires-untitled-whistleblower-project-about-big-pharma-1201903985/

    Hopefully, if completed, may inspire more needed whistleblowers

    May also probably be completed as the Opiod Crisis deepens (and, hopefully, as more awareness is raised regarding the SSRI crisis).

    The truth, as often said on Rxisk, is stranger (and even more incredible/gripping) than fiction.

    Already sympathetic to AIDS victims, their ‘underground’ battle, and unlikely heroes in the then crisis, anyone who might know anyone who might know anyone who might know anyone who might have Brenner’s number! (Though Professor David Healy, through driven, never looks ‘scrappy’!)

    Even for any interest in what may be a timely nod which could be woven in.

    (Matt Damon and Brad Pitt had picked up the Andy Berham whistleblowing story on Abilify ten years ago now but nothing appears to have come of it…

    https://www.cbsnews.com/news/bms-braces-for-tell-all-book-by-abilify-whistleblower/)

  16. “Fiction, huh?

    Peter Rost, M.D., former Vice President for Pfizer became well known in 2004 when he emerged as the first drug company executive to speak out in favor of reimportation of drugs. He is the author of KILLER DRUG and THE WHISTLEBLOWER, Confessions of a Healtcare Hitman.

    A number of books critical of the pharmaceutical industry have recently been published, but none has been an exposé written by a senior executive of one of the world’s largest pharmaceutical companies.

    The Whistleblower is at once an unmasking of how corporations take care of malcontents and a gripping story of one man’s fight to maintain his family and his sanity. Starting in 2003, the book details the illegal, even criminal business practices the author witnessed at his corporation, as well as his crusade to legalize the reimportation of drugs. It also explains how in this post-Enron world whistle-blowers can’t simply be fired, and what the author’s corporation did to coerce and silence him. A story of a battle that continues today, one which any American who takes or will take prescription drugs has a stake in, The Whistleblower is a powerful testimony.

    https://www.amazon.com/Whistleblower-Confessions-Healthcare-Hitman/dp/193336839X

    Pfiizer Whistleblower Sells Another Book

    http://nymag.com/daily/intelligencer/2007/03/rost_takes_another_shot_at_big.html

    Pfizer executive turned whistleblower Peter Rost is back doing what he does best: skewering his erstwhile industry. Rost was notoriously banished from Big Pharma after exposing tax fraud at Wyeth and illegal marketing at Pfizer; his tell-all The Whistleblower came out last year. His new project, a novel called The Wolfpack, was sold last week to Pagina AB in Europe. (It’s now being shopped to several publishers in New York.) “I wrote the story because I wanted to reveal the thinking inside a corporation, using the thriller format,” Rost says of his “Grisham-style” crime drama. The story follows a fictional drug company that develops a biological weapon and murders its enemies. Although Rost insists none of the characters are based on former colleagues, the new book is about “just how far corporate executives may be willing to go and what happens when one guy stands up to them.” Fiction, huh? —Jake Whitney

  17. “We’re hoping that the FDA’s interest … will bring some of pharma back in,” said Ressler. “It’s been too long since there’s been interest in depression.”

    https://www.statnews.com/2018/06/28/patients-suicidal-thoughts-antidepressant-trials-fda/?utm_source=STAT+Newsletters&utm_campaign=66712e8064-Pharmalot&utm_medium=email&utm_term=0_8cab1d7961-66712e8064-149674737

    The Food and Drug Administration is overhauling its guidance for developing treatments for major depressive disorder for the first time since 1977 — and this time around, it’s making clear that patients with a history of suicidal thoughts or behaviors can be included in clinical trials.

    Drug companies often rule out potential research participants with a recent history of suicidal thoughts or behavior, citing safety concerns or other issues. In a new draft guidance, the FDA says that patients with a history of suicidal thoughts or behavior “need not be systematically excluded” from clinical trials.

    “Although this [exclusion] has been and is acceptable, we would encourage sponsors to broaden their inclusion criteria as long as they are able to do so safely,” said Sandy Walsh, a spokesperson for the FDA.

  18. Readers may wish to be warned how imperiled the free internet is a the moment by an EU copyright directive to be voted on in the parliament on Thursday. If the directive goes ahead a blog such as David’s and many others will become unworkable, and will likely have to be taken down. The corporate fascists will have won. Brexit provides no solution in the UK because the main parties are already more or less signed up.

    You can contact your MEP easily and swiftly through this website:

    https://saveyourinternet.eu

    Please help to circulate

    http://www.jonathanarnott.co.uk/2018/06/the-internet-isnt-owned-by-any-government-but-a-tool-which-we-can-all-use-for-whatever-lawful-means-we-wish/

    http://www.ageofautism.com/2018/07/jackboots-back-across-europe-closing-down-the-world-wide-web.html

    This is the way the world ends, not with a bang but a whimper.

  19. The only reason I put up this ‘quote”, not about antidepressants, is because we should wonder where things are going wrong..

    Twitter users, blocked right left and centre, complainants being ignored, questions and answers signposting debate and all those harmed blogging, twittering, complaining..

    Rob Purssey suggests The Inner Compass – what can we do about the ‘Inner’ and ‘Outer’ Compass?

    Where does ‘Gotcha’ fit in to the frame of Data and Evidence?

    michael sharpe‏ @profmsharpe Jun 25

    To CFS and ME patients and activists. I am grateful to those who engage in genuine dialogue. Unfortunately not all do and some waste time playing games of ‘gotcha’. I am sorry but life is just too short and those playing games will be blocked. A lost opportunity.

    Is ‘Gotcha’ a way forward or a way backward .. ?

    Is everyone trying the ‘Gotcha’ card, failing or winning .. ?

    Is ‘Gotcha’ the way things are done or is ‘Gotcha’ the element of complete misunderstandings .. ?

  20. GSK director sued over US opioid crisis

    https://www.bbc.co.uk/news/business-44705658

    There were also questions, however, about why Lewent’s previous role at Purdue had been removed from a biography on the company’s website. 
    Glaxo added the information back after enquiries from the Financial Times newspaper, saying the altered text had been updated and approved by Lewent.

    http://www.dailymail.co.uk/money/markets/article-5914749/GlaxoSmithKline-dragged-drug-abuse-crisis-one-board-member-named-lawsuit.html

    According to FT, GSK removed any mention of Purdue Pharma from Lewent’s bio on its company website and annual reports but GSK appear to have returned it.

    http://www.lse.co.uk/AllNews.asp?code=22iaj2lr&headline=PRESS_GSK_NonExecutive_Director_Sued_In_US_For_Previous_Work__FT

    Truthman reports FT Article and ‘altered bio’

    https://truthman30.wordpress.com/2018/07/03/gsk-gsk-director-sued-over-us-opioid-epidemic/

    GSK declined to “comment on legal matters faced by another company”.

  21. Thanks John – There have already been covert threats about David’s blog in my opinion when members of the colleges and other self interested groups are claiming that the issues he discusses in open forums are supposedly undermining confidence in taking medications. To undermine and skew the truth is a well planned method of trying to shut down the increasing awareness of the harms being caused to thousands on uninformed vulnerable people .As is Closing down access to information. a political tool used by many governments to threaten those who challenge unaccountable power. They may not be burning books but political blogs are already taken down or made to edit content or be shut down by the hosts of blogs. There needs only to be a complaint made and the host has the power to shut down a blog according to a process they control.

    It’s worth a listen to Wendy Burn’s podcast on thebmj 5 days ago re International conference in Birmingham -where she declares that she has become very interested in politics since becoming president and realises it is a political role about money;power and influence. Goes on to describe the close relationships the college of psychs has been developing with politicians and other unnamed colleges . Mentioned Simon Stevens’ worry about social media effecting young people – that has some real cause but can also be used as an excuse to shut down sites. Prince William for goodness sake has seemingly become a listen to person on mental health – he is worried practitioners will become overloaded if people become more willing to be referred to services. Wendy disagrees and is repeating the mantra which is growing that more people are mentally unwell and need treatment. Most of the emphasis is on neuroscience eg learning from the USA – cells are being taken from people diagnosed with ‘schizophrenia’ and introduced into the brains of mice; there is a programme Investigating the brains of people diagnosed with ‘personality disorder’. That’s just a small flavour of her speech which completely avoided mention of the harms being caused by prescription drugs . Antipsychotics are given inappropriately by the cartload to the people she works with who suffer from dementia. That could have got a mention.

    • Great comment

      The high priests (and priestesses) of the royal college of psychiatry are zealots, that’s what’s dangerous about them. It’s about preserving the myths, the status quo, control, and of course maintaining power. All at the expense of patient’s lives..

      We (the mental health sufferers) are fodder..
      for the psych-pharma-industrial complex..

      That’s the sad truth..

  22. Susanne

    We think it is bad now but it is nothing to where it might be going: presently they are on the offensive but they are also on the run. If they succeed in closing down the world wide web to ordinary citizens – it becomes a dead place of adverts and propaganda for state and global behemoths – they will have us exactly where they want, and power will become ever more arbitrary and unchecked (also they will have publish less and less truthful information). People could be arrested, diappear, be murdered and no one would ever know about it etc. etc. A Labour MEP told me that they were to have a discussion with Tom Watson before the vote. I suggested to her that he might like to consider what the Murdoch press could do if there was an embargo in criticising them in public (just an example). For what it is worth I placed this comment on on the AoA blog:

    “Will

    “In the wellknown line from a not so wellknown play (Almansor) by Heinrich Heine: “Where they have burned books, they will end in burning people.”

    “That was written in 1823, before the days of the internet. Heine finally fleed Germany c. 1830 because of the rise in anti-semitism. Many of my American friends are worried about having their guns taken away, but people will find in the end that is nothing compared to having their words taken away. The mainstream media is completely discredited, so now they have to stop people talking and writing in the public medium of the time which is the internet (Almansor btw is set at the time of the expulsion of the Moriscos from Spain, not long after the invention of printing). Governments are not concerned about FAKE NEWS, they are terrified of REAL NEWS: they are deliberately dismantling any means by which the government-corporate machine can be held to account – they pretend this is about the rights of artists but it is about freedom of speech. I promise you if people don’t stand up (and sadly perhaps even if they do) we are heading for barbarism and chaos. This is the logic of human history.”

    • John – We have evidence of how dark it is behind the scenes when proof eventually comes to light of so many outrages eg people are ‘rendered’ and tortured (note the disgusting term they use) despite claims that UK had never done such things. The mind set is the same when it comes to harming people with drugs – people are dispensable. It’s astonishing how groups in a democracy can hold so much power over other’s lives – The positions of control are held and passed around by small cliques who know how to work the system. How many of them are ‘chosen’ to write up and cover up all sorts of abuses eg Grenfell could have been another one altogether if the wonderful community hadn’t fought back, but how far they succeed will be ‘interesting’. Tokenistic consultations are often just a con to keep people quiet , So many people have sat on cttees etc only to find they are being used- The Scottish and Welsh petitions on prescription drugs were taken seriously by a tiny few in parliaments who encouraged them but no action will be taken, ditto re the college of psychs. who can simply decide to dismiss a complaint. As we know There are many people of good faith and sometimes the light shines through because of their actions which largely relies now on sharing info on the net The articles in the Guardian etc published on DH blog are a hopeful breakthrough when journalist won’t usually touch the subject even if still had to be published anonymously. They wouldn’t have been published if so many activists and supporters hadn’t persisted in highlighting the truth – When the middle classes get the message through such as the Guardian then push backs will increase even more I guess – or in cloud cuckoo land ,they might find they have left it too late to shut down the message and even start telling the truth. But People are afraid of those who should be standing up for them and more and more regulations place those in a bind. There is another group of activists who are tech savvy who will know how to get through controls on the net – but most of us will be in the dark again if it keeps getting shut down . I guess most who do know what’s what will carry on doing as much as possible hoping the word is taking hold enough to change things – as it has for many and as gives hope and expertise to others. .

      John – do you know what happens when content of blogs is taken down? Is it somehow disappeared along with as you rightly say – the human beings who are ‘ disappeared’? If so it would be necessary to make copies of significant abuses such as reliable accounts of suicides and other harms from medications . Otherwise all that will be left is fake data.

      • Susanne

        Presumably people would do their best to preserve data and exchange it privately etc but it becomes much easier to harass them – the need to record becomes an ever greater imperative. The basic story with mainstream media is that with occasional chinks of light it gets worse, ever more under the thumb of government industry proxies like SMC and SAS. And we have seen MSM silence over the European Directive – one MEP told me they had more 50,000 letters, but it is not in the mainstream narrative – and they have competing interest.

    • I am glad to say the European Parliament voted out the directive this morning after massive citizen lobbying (despite no mainstream publicity). The European Commission will be back with new proposals in September.

  23. Kristina K. Gehrki‏ @AkathisiaRx 35m

    Tune in today to the radio show “What’s it All About” where I’ll discuss medical freedom of choice, Informed Consent & psych drug dangers. Broadcast starts at 6 p.m. East Coast time; 3 p.m. West Coast time. See

    The Stations that leaves no Listener Behind

    http://www.kcaaradio.com/

    Independence Day ..

  24. Ooh La La ..

    Simon Wessely‏ @WesselyS 9h

    Replying to @Andy__Bell__ @wendyburn

    Really excellent tour d’horizon from @wendyburn on #NHS70 and #mentalhealth pointing out recent successes such as perinatal, challenges to come, such as adolescents, and where we are falling behind, such as severe mental illness

    Le Gateau …

    https://www.theguardian.com/commentisfree/2018/jul/05/mental-health-nhs-priority-health-service-underfunded

    A fair share for mental health has to be the NHS’s priority

    Wendy Burn

    That the problem is recognised will be a start. In the long term, expectations and ambitions need to be raised. We need to aim to treat the majority of young people who have a mental illness, not the minority.

    Singing the Same Old Song ..

    https://www.bing.com/videos/search?q=edith+piaf&&view=detail&mid=35D0A364DBC4CFA8CD5635D0A364DBC4CFA8CD56&&FORM=VRDGAR

    The voice, kids ..

  25. There is simply no incentive for anyone to get to the truth.
    Atleast no incentive that has a greater allure than the current state.

    From our (my) perspective, we have alot of noble and well meaning incentives, but that has no place in ‘modern society’.

    “We shall treat, never cure” and move from one chemical to another.

    “We count blessings, never the curses” and silence the fallen at almost any cost.

    “Ask your doctor, never question him” stay off google to solidify his power to function as a front line liutenant for Pharma.

    Ove2018

  26. David Carmichael
    19 hrs ·

    The Wendy Dolin vs GSK lawsuit about the Paxil-induced suicide of her husband Stewart in 2010 is in the news again. On July 3, Cook County Record published this article about the GSK appeal of a $3 million jury verdict in 2017. “The U.S. Supreme Court has decided to wade into the contentious question over whether a pharmaceutical company can be held liable, potentially costing many millions of dollars, for failing to warn consumers and doctors of a drug’s potential effects, when federal regulators prohibited them from adding such warning language to the drug’s label.”

    SCOTUS takes Merck’s Fosamax appeal, could boost GSK’s appeal of $3M verdict over lawyer’s suicide

    https://cookcountyrecord.com/stories/511474546-scotus-takes-merck-s-fosamax-appeal-could-boost-gsk-s-appeal-of-3m-verdict-over-lawyer-s-suicide

    Attorneys for Dolin, however, asserted drugmakers like GSK have never demonstrated conclusively that the FDA actually ever barred them from including specific warning language on their labels. Rather, plaintiffs have argued the drug company didn’t push hard enough to persuade the FDA to add the language.

  27. NICE Guidance on ‘The Treatment of Depression in Adults’ has resulted in the harshest of responses from the British Psychoanalytic Council on their web site pub 05/07/2018 (with thanks)

    NICE was forced to revise their suggested guidelines at the end of last year but this second revision has been condemned again – BPC ‘Stakeholder Position Statement on the NICE Guideline for Adult Depression’. pub June 2108

    The majority of stakeholders are therapist/analysts with some input from ‘user’ orgs and is signed by the college of psychiatrists but not college of GPs (as far as I can see) Although Clare Gerada ex president,has signed she has signed as an individual and not as a member of the therapy org she belongs to . Nor has Simon Wessley who signed as an individual signed as a member of the scientific org he leads.

    Their ‘Summary of Concerns’ includes a Lack Scientific Standards and Integrity and calls for 6 Amendments

    In Summary:- ‘There are serious methodological flaws…the treatment recommendations cannot be relied on ..will be misleading, invalid, and impede care of millions of people in UK. and internationally.. potentially causing clinical harm.
    (INCREDIBLY) NICE agreed that there are valid concerns but ‘ ..NICE suggested these could be addressed in the next revision. We hope that NICE will improve their methodological approach in future , These issues must not be postponed .NICE guidelines have a significant influence on UK policy (and an effect internationally). Therefore the Published guideline in it’s current form would have a damaging effect on service users, the health professional workforce and research practices.

  28. The Zebra Trilogy …

    Editorial: This series of posts on Stewart Dolin’s death interrupts a series on how to bring about change . This is not inappropriate as law suits are one of the few ways to bring about change. This post in the series is by a Chicagoan – Johanna Ryan who has been tracking the case since it was filed first. 

    How a Chicago jury got it right

    Change in Chicago: The Dolin Verdict
    May, 1, 2017 | 22 Comments

    https://davidhealy.org/change-in-chicago-the-dolin-verdict/

    Possibly one of the most critical posts on ‘What to do about Suicide’ with some truly enlightening comments …

    22 Comments for the Catch 22 ..

    Zebras

    A contemporary person who has collected his share of Zebras is Dr. David Healy, whose early experience with patients who became violent on SSRIs has elevated him to expert status on the subject. He’s currently blogging about the cases every few days [e-alert sign-up here].

    http://1boringoldman.com/index.php/2012/03/07/the-warning/

    Zebras

    https://leoniesblog.com/2018/07/08/get-the-hippocratical-boat/

    Posted on Wednesday 7 March 2012

    1BOM – the warning

  29. Hi Dr. Healy and others!

    Stumbling across your website and reading the articles and comments has saved my life! And I know I’m not crazy.

    At 20, I was placed on the “god send” Prozac which was fairly new back then. My parents had just divorced and my grandmother tragically had just died in the most unexpected manner. Hardly a call for Prozac but I was young, in college, took the advice of the doctor. The next 16 years became a revolving door of being switched to every “new” antidepressant came out. Finally in 2015 I found myself on Paxil for the second time. I’d basically stopped functioning, was exhausted all the time I decided no more antidepressants. I had a heck of a time getting off of it but eventually I did.

    In the meantime however over the next few years instead of things getting better they got significantly worse. I had such severe insomnia coming off the Paxil I was put on up to 550mg of Seroquel to sleep, 60mg of Adderall for “ADHD”, 300mg of Lyrica for migraines, 3mg of Xanax for “panic disorder “. The real wake up call came when I was put on 300mg of Lamictal in March, 2018. My dose was raised over 3 weeks from 100mg to 300mg over three weeks. I became non stop suicidal, 24/7. It was the final wake up call I needed.

    I found a former physician of mine to help but I’ve had to do the work! Since May, I’ve come off the Lyrica, Adderall, and Lamictal cold turkey. I just finished my Seroquel taper. I dropped from 3mg of Xanax to 2mg, and will handle the rest of the benzodiazepine with small cuts of diazepam. My energy is low, anxiety high, rebound insomnia, but for the first time in over 20 years I’m remembering things, I have hope, and I’m incredibly proud of myself for pushing through this to end the nightmare forever. My life is worth more than this and maybe the next 20 years will be the best of my life as the last 20 have been the lowest human should face.

    For anyone going through withdrawal of any of these medications please hang in there! It’s certainly not been easy but it’s worth it. The best part of all is I don’t truly believe there ever was wrong with me, although at 20 years old when this started I couldn’t have known I guess. That’s a very freeing thought for me and I hope others!

    • Ali, you deserve a medal! Thank goodness that you were able to free yourself from all the drugs. I am sure that your story will inspire others who are struggling through withdrawal at present. I hope that you will now help all of us to raise funds for the Rxisk prize Fund and to raise awareness of what these drugs do – which is give you the idea that you are ‘mentally ill’ when, in fact, no such thing is true!

    • I agree that you deserve a medal and you should be so proud of yourself.

      When I was ‘new in’ (or ‘out’) Rxisk more than any other site had saved my life also (when I was suffering from horrendous withdrawal symptoms including akathisia) and was a great source of open education, validation, consolation, advice and support to those who have suffered from side effects and adverse effects.

      That’s a lot to go through, I think, since May.

      But just great that you found a doctor at least willing to support/help.

      If ‘new in’ and not already receiving support, also try to and get some recognition and some support amongst friends and/or family if you can and in what may be a freeing but maybe, sometimes, also an angering, frustrating, lonely and isolating experience. Rxisk articles and blogs are accessible to the disaffected.

      Also, and where I don’t want to sound negative at all and where you are so buoyed and brave, if I could go back, and albeit only in my case, I would bear in mind that that you have been exposed to the drugs for a long time.

      Though you seem in far better shape than I was and it may be one of those in for a smoother sailing, just to let you know where I was determined as hell to be free from the drugs which had only ever caused me harm (but where, in my case, I had become so physically dependent I could hardly walk without support, and continued to cut my nose off to spite my face) that it would be no personal failing on your part, no lapse of morals on your part, nor reason to self-flagellate yourself, if you ever find yourself ‘back there’. It is a process.

      Great to hear of your progress and zeal and hope that yours continues to be one of the positive outcome stories so many try to find and find hope in.

  30. Good news! Today on CBC News ‘Federation has ordered Health Canada to Release Confidential Drug Data on HPV Vaccines’. Not all the way there yet but a great step forward as far as I understand this news report.

  31. Ultimately – how much does, pressure succeed …

    What to do about ‘Corporate’ Suicide .. .

    BOB FIDDAMAN‏ @Fiddaman

    “Please note that @GSK takes all allegations of misconduct seriously, including those raised in Mr. Fiddaman’s weblog.” ~ GSK’s Vice President for Compliance for Emerging Markets

    Truthman30‏ @Truthman30 2h

    I wonder did they read the backlog of your ten years of posts! … They really are delusional.. anyone that works for GSK would have to have their head buried in the sand…

    https://twitter.com/Fiddaman

    Saturday, July 14, 2018

    GSK Management in a Tizz Over Fiddaman Blog

    https://fiddaman.blogspot.com/2018/07/gsk-management-in-tizz-over-fiddaman.html#.W0oqgPZFwzM

    “Speak Up culture” ..

    “If you would like to speak with someone in the company about this or any other concerns that you believe have not been addressed, we would be happy to make a member of the company’s Corporate Investigations or Compliance Team available to speak to you.”

    The Evidence, However, Is Clear, The Seroxat Scandal …

  32. Dear god help me. I have severe akathisia and I’m afraid I won’t last long. I don’t know what to do. I reinstated an antidepressant due to muscle pain. Just muscle pain. I didn’t know it would kill me! Something about the reinstatement caused serotonin syndrome. I’m 28 years old! I’m struggling to live. It’s like being tortured 24/7 by your own body. This is a crime against humanity. I had so much potential. I was an officer before all this happened. I was never even depressed. I have wonderful family and friends. After the reinstatement I went to the hospital and the dr told me it didn’t exist and made me take Ativan telling me it was all anxiety. That made my akathisia tardive and permanent. Every pill I’ve taken since has made me worse. I’m afraid. Please god let there be a cure for this hell. I’m so afraid. I wish I could turn back time.

    • Savita

      My heart goes out to you.

      Although it’s almost impossible to believe when you’re in the grip of it, please know, from someone who has been put through something similar and who was pushed to the edge with it, that if you are suffering from akathisia that it is horrendous but will dissipate.

      I also (too many) also had a doctor figuratively ‘murder’ me to add insult to injury – and dangerously (when already subjected to a terrible state).

      The mantra: these effects, this state, will dissipate. I am not crazy.

      Hoping you can find friends or family and refer them to what you are going through and they at least may provide you with some support.

  33. Dr. Healy what does one do to be cured from tardive akathisia. This is a crime against humanity. By the way the psychiatrist that made me take Ativan he told me you were working for pharma companies. I tried to tell him and he murdered me with his lies.

  34. Isn’t this Pure Dead Brilliant …..

    https://davidhealy.org/magna-pharma/

    Magna Pharma

    Faced in 2012 with questions about the $3 Billion fine imposed on GSK – triggered by a sequence of events starting with Study 329, – is it just the cost of doing business? Andrew Witty snapped back:

    “Although corporate malfeasance cases end up looking very big, they often have their origin in just… one or two people who didn’t quite do the right thing. It’s not about the big piece. The 100,000 people who work for GSK are just like you, right? I’m sure everybody who reads the BMJ has friends who work for drug companies. They’re normal people… Many of them are doctors.

    Jorge H. Ramírez says:

    July 13, 2015 at 9:27 pm

    “The licensing of drugs is a bureaucratic procedure that has nothing to do with science. As things stand, the way FDA goes about approving drugs has enough of the appearances of science so that most doctors and patients are fooled into thinking there has been a science based decision when there hasn’t.”

    – Agreed.

    There is even a reference to – Hannah was here.

    In the comments …

    “They will ALL get it one day, but in the meantime, we have much serious work to do, linking arms in solidarity, and the devil take the hindmost.” – pure dead brilliant, Heather R.

  35. What to do about ‘UK Royal College’ Suicide ..

    John Read‏ @ReadReadj 18h

    UK psychiatrist Wendy Burn catches hell for “dangerous claim” of “withdrawal symptoms disappearing within two weeks of stopping antidepressants” –

    http://www.psychsearch.net/wendy-burn/

    Thirty Mental Health Experts Write to Secretary of State About ‘Unprofessional’ Conduct of the UK Royal College of Psychiatry

    https://www.madinamerica.com/2018/07/30-mental-health-experts-write-secretary-state-unprofessional-conduct-uk-royal-college-psychiatry/

    Extract:

    Following the Royal College of Psychiatrists’ refusal to retract a public statement minimising the withdrawal effects of antidepressant drugs, and their suppression of research evidence that contradicts their statement, 30 mental health experts have, today, written to the new Secretary of State for Health and Social Care to inform him that “the Royal College of Psychiatrists is currently operating outside the ethical, professional and scientific standards expected of a body representing medical professionals”.

    This is a matter of grave concern since it involves information about prescription medications taken by millions of people across the UK. We feel that this matter requires urgent attention and should not await the results of the Public Health England review into Prescribed Drug Dependence.

    We have appended the original Complaint, with all the relevant research evidence and correspondence. We believe the RCPsych responses show a trail of obfuscation, dishonesty and inability or unwillingness to engage with a concerned group of professionals, scientists and patients.
    If a group of scientists and psychiatrists together cannot challenge the RCPsych in a way that leads to an appropriate, considered response and to productive engagement with the complainants, what hope is there for individual patients to have a complaint taken seriously?

Leave a Reply