Pandemonium and Pandemrix

November, 27, 2017 | 11 Comments


  1. A new narcolepsy epidemic

    In 2010 there was a startling increase in narcolepsy across the UK and northern Europe. With new cases developing on a weekly basis, some doctors described it as an epidemic.

    Why this matters

    We believe that the causal link between the Pandemrix vaccine and a rise in narcolepsy cases has been established, and that our society has an obligation to look after individuals who develop narcolepsy as a result.

    Brain-Damaged UK Victims of Swine Flu Vaccine to Get £60 Million Compensation

    Reports of narcolepsy in Europe following vaccination with Pandemrix™

    GSK initially became aware of possible cases of narcolepsy following vaccination with the adjuvanted H1N1 pandemic vaccine Pandemrix through adverse event reports received by the Swedish Medical Products Agency, and subsequently via media reports in Finland

    GlaxoSmithKline European regulatory update on Pandemrix™

    By way of background, the Pandemrix vaccine was developed by GlaxoSmithKline and given to 6 million people during the global H1N1—swine flu—pandemic in 2009 and 2010. Owing to the nature of that pandemic, the European Commission, on the advice of the European ​Medicines Agency, fast-tracked the vaccine’s licensing. The UK Government then undertook a vaccination programme, based on advice from the Joint Committee on Vaccination and Immunisation. In short, Pandemrix was licensed for use in the EU, including the UK, without the usual clinical trials having been completed.

    Although I acknowledge the difficult balancing act involved in weighing the risk of a pandemic against the risk of fast-tracking a vaccine’s licensing, that does not excuse the fact that some patients were not made aware of the facts, nor does it excuse the Government from subsequently attempting to avoid responsibility for the damage caused. Making the vaccine available at the time of the pandemic clearly came with a degree of risk. GSK was given an indemnity from any liability by the UK Government. My constituent has made it clear to me that she was not informed that the vaccine had not been fully tested or that GSK had obtained an indemnity.

    Prior to September 2013, the Government said there was insufficient evidence to establish a causal link between the Pandemrix vaccination and the development of narcolepsy.

    To give some context to the UK Government’s position, Sweden, Finland, Norway, Iceland and France have already compensated those who developed narcolepsy as a result of the Pandemrix vaccine.

    First, by virtue of GlaxoSmithKline requiring an indemnity, there was recognition that the vaccine carried a risk. Reliable studies now link the vaccine to narcolepsy.

    The authoritative response here was – there is no link.  Does all Hell (Pandaemonium) break loose if we don’t believe the authorities?  What kind of evidence, if any, might be used to stop people from closing down a sensible debate about these questions?

    It seems there is almost no story in which we are not involved in some way or another.

    My daughter called me one day from Canada where she lives and dropped in, mum, I’ve got swine flu. I’ve had to pay to go to a doctor. I have been pretty poorly but I’m alright now after he told me to rest, sleep and see it out..

    • Annie, some more info re GSK, Pandemrix and conflicts of interest from a news article titled “WHO vaccine expert had conflict of interest, Danish newspaper claims”, published in The BMJ in 2010, a quote:


      Controversy has arisen at the World Health Organization after allegations that some WHO experts, including a leading vaccine adviser, have financial ties to the drug industry.

      Documents acquired through the Danish Freedom of Information Act by the Danish daily newspaper Information show that Juhani Eskola, a Finnish vaccines adviser on the WHO board, has received £5.6m (€6.2m; $9m) for his research centre, the Finnish National Institute for Health and Welfare. The money, from GlaxoSmithKline for research on vaccines during 2009, is the institute’s main source of income.

      Professor Eskola is the deputy director general of the institute and a member of WHO’s Strategic Advisory Group of Experts on Immunization (SAGE), which advises member states on which vaccines to use and how much of these they should purchase.

      GlaxoSmithKline produces the H1N1 vaccine Pandemrix, which the Finnish government stockpiled after recommendations from Professor Eskola’s institute and WHO.

      Information recently alleged that several members of WHO’s expert group had ties with the drug industry. It also claimed that, although some of these alleged conflicts of interest had been made public, Professor
      Eskola’s links had been withheld…


  2. Fake news science pretty scary.

    Allen Frances‏ @AllenFrancesMD Nov 27

    Allen Frances Retweeted RealTruthAboutHealth

    Weirdest panel I’ve ever been on.

    Director of “Vaxxed: From Cover-Up to Catastrophe” confidently presents #Wakefield conspiracy theory #Vaccination causes #Autism.

    I try to defend reality/diagnostic caution, but audience strongly agrees with him

    Fake news science pretty scary.

    The Truth About Vaccines | Experts Panel

    “all these things lead to the same problem” ..

    Weirdest Panel or ‘Weirdest’ Panel ..

  3. The Flu Jab – Tom is a 71 year old man – he had the flu jab Monday of last week – he has it every year and seemed OK those years – Last Monday week he was given the Vitamin B12 injection the same morning he got the Flu Jab – by the time he got back to his house he could hardly move – he says he has had three injections – but he was calling the blood tests an injection also. By day 3 he was in the full heights of the ‘flu and was very disorientated – his muscles were sore, his joints and sweat was pouring out of him that he had to change his clothes several times over the next days.

    He was confused as to what happened. He had bruising coming up on the back of the hand but I reminded him that that was from the B12 injection which he had last year as well. I asked him to go back to his doctor. He said there is no need to as he is to see him the following Monday to get the Pneumonia vaccine injection. I told him that I had never heard of the Pneumonia injection – he said that GP told him the Pneumonia injection is only once in a lifetime jab. Within 6 days of the flu/vitamin B12 he could not sleep. By the time he went to the doctor a week after receiving the Jabs he was still very ill. Thankfully he told the GP that he doesn’t think he could take another injection – the GP has put the Pneumonia injection off for a further two weeks. His blood tests show that his iron is low so he has been put on Galfer – one a day. When I read Dr Healy’s post on the Flu Jab, I asked Tom to read it – I wanted him to read about the anger bits and the mood changes. Thankfully he did read it. I noted that Tom who was always an antagonist – he would shout at politicians etc on television to the point he had to be asked to “calm down before you give yourself a heart attack” but his irritability was different this time. In 10 days I witnessed a different man – he was so frustrated, tired, shouting at the least little thing and just in bad mood. For the first time I saw a frightened anguished old man who did not understand what the hell was happening to him….

    He goes back to his GP he trusts to get the Pneumonia Jab. I pray he doesn’t…

  4. The Flu Jab, and the dilemma facing certain healthcare professionals.

    At a recent appointment for treatment by my osteopath, who I have known for several years, who is very effective, and for whom I have great respect, the conversation turned to vaccines, as I had been thinking about getting my annual flu jab. I have been following the discussions on RxISK recently on vaccine safety, and was telling her this.

    She told me that a colleague of hers in the same county, who had strong feelings about vaccine safety as she has done a lot of research on the subject, got into a similar conversation with a patient, and without trying to influence that person, merely expressed her own views, partly gained from a publication called WDDTY (What Doctors Don’t Tell You) she assumes. It could have been from reading RxISK of course, we don’t have this factual detail.

    To her consternation, that osteopath received a menacing letter from the patient”s GP saying how dare she influence anyone not to have vaccinations, she is not a doctor, and vaccination is not part of her work. It has brewed up into a big row and disciplinary action being taken against her. She insists she would never advise a patient on the subject of vaccinations professionally, but on the other hand, she is known to feel passionate about vaccine harms, and was just drawn into conversation by the patient, and simply expressed her personal views. It seems that her own Union has not been very supportive, though again, we do not have factual detail on this,

    But what is concerning is that doctors can become angry, and take to task others practising in the health field, for daring to express their views or directing interested patients to research, on vaccination, by writing them strong and menacing letters and putting their livelihoods at risk. The osteopath in question has been so shaken by this that she is thinking of giving up her work. One assumes that the patient had gone to see the GP on some matter but declined a vaccination of some sort, and said they were concerned about it having heard more information about it from their osteopath in discussion during treatment.

    Does this mean that other health workers are now putting their jobs at risk if they dare to express views on the safety of vaccinations?

  5. ‘The antivaccination people are very active, and the media doesn’t want any trouble. It’s a sad story.’

    Doctor wins 2017 John Maddox prize for countering HPV vaccine misinformation

    Riko Muranaka awarded prize for efforts to explain jabs’s safety amid scare campaigns which have seen Japanese vaccination rate fall from over 70% to 1%

    Simon Wessely Retweeted

    Sense about Science‏Verified account @senseaboutsci 13h13 hours ago

    Congratulations Dr Riko Muranaka! Winner of the 2017 #MaddoxPrize!

    Sense about Science Retweeted

    BBC Woman’s Hour‏Verified account @BBCWomansHour 11h11 hours ago

    Tomorrow at 10am, we’re joined by the winner of the #MaddoxPrize – a prize celebrating sound science of public interest in the face of difficulty and hostility

  6. Complete mystery surrounds what has happened to the Vaccine Damage Payment Act awards for narcolepsy injury from Pandemrix. The government was first of all forced to acknowledge such injuries happened because they were being picked up by agencies in Scandinavia, but the Department of Works and Pensions had created a Catch22 to avoid payment, by claiming that future needs were unpredictable – a preposterous claim with was thrown out in the Court of Appeal early this year. But apparently still no awards have been made. In fact it appears that no awards have been made under the act since 2010, and these had indeed be reduced to a trickle since the early 1980s.

    Of course, if governments don’t have to acknowledge injury it somewhat reduces the incentive to avoid it in the first place, and there is no doubt the Pandemrix project was inherently reckless – which was acknowledged by the government providing legal indemnities to the manufacturer, GSK. Even this, however, is likely to prove a fairly notional risk as I am sure the victims and their families will be continue to be obstructed from bringing a prosecution.

    Readers may btw be interested in my evidence to the House of Commons Digital, Culture, Media and Sport Committee inquiry into Fake News, which the committee have now published.

    • A leading politician at the time offered me the view at the time of the swine flu scare that they could not be seen to do nothing, but I also recall a leading critic of the vaccine system – Marc Gerard – comment on French TV that in the Middle Ages they would probably kill some Jews if the wanted to do something, but it did not make any more sense.

  7. Here’s how it goes for your average patient this year in the UK; the NHS is teetering on the brink of chaos this winter, due to chronic underfunding, lack of acute beds and all the rest. The flu jab has become a political football – because an outbreak of flu is likely to cause a ‘last straw’ scenario. So, Public Health England launches its biggest ever campaign to increase uptake of the vaccine (presumably using a PR firm, at some cost). This, despite the fact that it takes a PhD in pharmacology to work out which strains are covered by the 2017 vaccine and whether that includes the one that caused problems in Australia recently. It is, frankly, impossible to work out for yourself whether the jab will protect you – the only figures I tracked down were a general admission that, at best, it reduces your risk of flu by 60%. Which is fine, real flu is deeply unpleasant….but. I had the jab last year and, like everyone else I know who also had it, spent 10 days feeling unwell – and most of the winter suffering from various flu-like viruses. I may not have succumbed to the real McCoy but neither did I feel great.

    The medical narrative goes like this:

    It is your civic duty to have the jab, otherwise you will spread the virus and kill small babies and old people.

    It is frankly impossible to feel unwell as a consequence of the jab; if you say that you have felt grotty before, that is because you are damn stupid and don’t understand the difference between an active virus and the inactivated vaccine. You are having a psychosomatic, imagined reaction.

    If you persist in maintaining that last year you felt so ill, you are not prepared to have it again, you may get a grudging acknowledgment that some localised pain at the site of the injection is possible – and that, just possibly, your immune system reacting to the inactivated vaccine might make you feel a bit unwell for a few days. HOWEVER – that is very, very small beer compared to having flu, so……

    This year, since the beginning of November, I have received
    two letters from my surgery, inviting me to have the jab.
    A friendly voicemail on my mobile from the practice nurse inviting me to have the jab.
    A daily text message inviting me to have the jab.
    The day I got two text messages, I blocked the surgery number. It felt like, and was, harassment. The very fine line between offering a patient a (possibly) preventative vaccine, in the absence of any informed discussion, and state enforcement of a treatment is getting gossamer thin. I suspect enforcement is closer than I like to think, as more and more people are becoming refuseniks. Patients are not as stupid as we are so frequently made to feel: it doesn’t seem to have occurred to anyone that the unintended consequence of pressuring people into being vaccinated is likely to be resistance – not to influenza but to having the jab at all.

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