RxISK Stories: Listening to Parents

October, 26, 2012 | 5 Comments

Comments

  1. An absolutely brilliant description of the aftermath of a child suicide on a family. This is my story too. I have experienced the “in a better place” etc platitudes from family and friends, the ” it was the depression not the drugs” from health professionals, the avoidance tactics by others. So it continues Drug companies are not held responsible for flimsy and even false information provided with their drugs . Doctors are far too quick to choose the drug route to treat life’s problems, Their choice of drug determined by the pharma company sales patter and maybe a few clinical trial results skewed sufficiently in favour of their particular offering. When things go wrong for the patient it’s a higher dose or more medication – never a consideration that the medication is now the problem.

  2. The comment was:
    ‘even the media don’t want to know.’
    That is incorrect.
    It all depends on how you handle the media. Don’t forget, ever, that the media are always available for a real good, gobsmacking story of undeniable suspense, excitement and intrigue.
    We have a story here, that is gigantic. It is so gigantic that it has been missed by mainstream media because no-one has, yet, told it how it is – to the media.
    Many have tried, bits and pieces are hinted at, and yet, no-one has told the unvarnished story of how life can be snuffed, in a blink, by ssris.

    We have important blogs, we have books, we have a few incredibly brave people in the know, but no-one has managed to give a full account of what it is like, to the media.
    There are a few hundred people in the UK, hanging on by a thread, for some sort of recourse. Each and every one cannot say a word about it for various political/legal/personal reasons.
    Suffocating stifling of people speaking out is going on for various reasons.
    So, what to do?
    Clearly, the constant arguements go back and forth and back and forth.
    ‘Nobody’ should doubt the strength in numbers of people who have been to hell and back with ssris and this voice is growing, and is strong, because if you can overcome the vile, deceitful, inept platitudes of ‘those who are there to protect’ and go through all the ‘horrors’ of the mental and physical agony, then the war is on.
    It is only a matter of time, now, before all this explodes, and a media storm takes over.

    See how the Saville case is exploding; take note, this is remarkably similar territory, but more grotesque and more rotten and more life-threatening.
    You have to know how to use the media, they are very open to ‘scandals'; sadly all the so called ‘medical experts’ just live in a different world of denial and back-off, when tested, because they are cowardly, inept, and somewhat, ridiculous, people, whose ‘careers’ are more important to them than ‘the ruination/sabotage’ of lives.
    This is now war on ssris and whoever wants to take it further ‘the ball is in your court’.
    Manage your life; manipulate the media. Don’t let them manipulate you. It is not difficult, think about who you are, and never, accept any less than you think you are worth. You only get one life, and it is to be lived, not ended prematurely, or even lived in a ‘drug-induced’ state; this is really not on and we know it.

  3. Here’s what I wrote a while ago in a blog post about a young professional hockey player and Harvard grad who killed himself after resuming his hockey career:

    When the myth of the speedy recovery by drugs is exposed, the mental health community lies to the public again by telling us that there was never any chance anyway. They now tell us that schizophrenia is a life sentence. In Tom Cavanagh’s case, the doctor painted a picture to the parents that death may be the only release for a diagnosis of schizophrenia. The obvious question that I would raise would be then why did you lie to me about speedy recovery?

    Cavanagh’s doctor sat with the family later to explain why Tom might have done this. He told them how the schizophrenia can manifest itself in males in their mid to late 20s. It can be, he said, a raging fire that grows out of control.”He painted a rather dismal picture of what the future is for someone with this disease,” Joe Cavanagh said. “That’s why we’re happy that he didn’t hurt someone and he’s not in jail.”

    The myth of the medical cure and speedy recovery is once again being use to prop up the community myth of the unhealable schizophrenic.

  4. No, media is not on your side. They are on the side of what pays for the newspaper, the magazine, the news website. That’s Pfizer, Glaxo Smith-Kline, Eli Lilly et al. they buy the ads, sponsor the staff golf tournament and fill the pages with marketing department written advertorials (prose ads). This all pay the way for print media especially who are in a losing battle against the internet.

    Media will do one or three human interest stories, and that’s checked off the list. Don’t expect more.

    Media will report FDA warnings, use the comment sections to tell your experience, be as factual as possible, do not be profane or you risk being banned and then what good will your story be?

    Media will report court cases. Talk to the lawyers doing drug legal, they will tell you if you can join a class action.

    Report your negative drug effect to the pharmacist, to the FDA, MHRA or Health Canada. dO NOT BE DISUADED THEY WILL TRY. Fill out the forms. You don’t need to KNOW for sure the drug caused your vision loss, you just need to report you were taking a drug that you have now learned does that, when you had vision loss.

    Report your suspected injury. Don’t either rely on or expect your doctor to report to FDA et al. They will not, and will either shine you on, or be so hostile you go away in despair, and try to recover from further injury, verbal and emotional abuse.

  5. Learn how to use Google. Search: my drug name + vision loss. Start reading.

    Do not trust sites which are sponsored by or directly come from pharmaceutical companies. If there are side effects reported there for your drug, they will be minimized and called rare. Take note. It either happens or it doesn’t. If they say it happens to those under 17, same story, your body does not know it’s 27, it may be at 17. The drug either does that, or it does not.

    Some sites to check, apart from DavidHealy:

    Pharmalot: chronicling phamaceutical companies in court or heading there:
    http://www.pharmalot.com/

    BenzoSupport: benzodiazapine and anti-depressant withdrawal and recovery information. http://www.benzosupport.org/reovery_tips.htm

    Therapeutics Initiative: Run by a member of the Cochrane Collaboration our of the University of British Columbia, funded by the B.C. Ministry of Health, and takes no industry support to do their drug examinations: search your drug.
    ti.ubc.ca

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